chrysilla: HUGS! (HUGS!)
Today I'm starting on L-Lysine, tho I'm not sure I haven't taken it before, from the good doc I saw back in 2012? *shrugs* Supposedly it shanks EBV, here's that theory in a nutshell: http://epstein-barr.blogspot.com/2005/11/positive-results-with-lysine.html
Further googling repeats that theory in more complicated explanations. Some sources say I should be taking 500mg three times a day, but Ima start with once.

Tried increasing my vitamin C from 1g to 2g's last weekend, but then had a very painful IBS flareup for no apparent reason. So I'm back down to 1g, and trying the lysine instead. Might try 1.5g in a few weeks.

I should post a list of all-the-supplements I take, and then post new lists as things shift and change. Log how my life improves or doesn't.


Energy levels are not so much increasing as becoming more spastic or even bipolar (not mood wise tho, phew). Some weekends I get a ton of housecleaning done, or I successfully run a session of my tabletop rpg for an evening, and other weekends I can't do more than doze on the couch listening to music I already know*. I've had problems remembering to eat enough on weekends, but even with that problem fixed I'm still having trouble with this. I feel like I'm looking for one more (magic?) pill to put me over the edge of healthy, but I'm not sure if that's delusional at this point.


The hunt for a new doctor continues. Read more... )

There is an EBV patients group on FB someone on twitter pointed me to, but I had to shut off the auto-updates b/c of the antivax nonsense. Just... no.

That's really the worst part of this. I like peer reviewed science. But unfortunately I'm not dying fast enough for medical science to give a crap yet. To the point where I can't even find a doctor to treat me for reasonable fees. So I have to trawl the loonie fringe sites for self-treatment ideas. Ugh.


And that's the spoonie news for this ... week? Weekly updates would be good. Remembering to actually track that often would be a miracle tho.

<3 Chrysilla


*FYI, there is such a thing as being too fatigued to listen to new music, or read a book. Or watch a new-to-you movie. Or watch a new episode of a tv show you already know and like. And I've been this way for almost 6 years now. If that *wasn't* the case I'd be a nerd trivia master by now :-P
chrysilla: I rocked out at Mutant Peep Nite (Hedwig Peep)
So... yah. That!

Did a mostly OK job of keeping up on sleep until Wednesday, when I did the gamer downtimes meetup and stayed out too late again. Tho in my defense the trains are screwed up. Tho I should have remembered they were screwed up from Monday nite. *shrugs* I think I got to bed on time Thursday nite too, after much packing and prep work, don't quite remember.


A lot of Arisia is still a blur. I was very worn down, brainfogged, and extra-zombie-fried for most of it, so the happy wasn't as cathartic as last year. However, it was really wonderful hanging out with my local Boston friends as ourselves (rather than as larp characters), and likewise seeing friends from elsewhere and, um, NYC whom I don't see very often. B/c leaving the house is hard. Very much calling this a win, Arisia was wonderful even though my brain was broken. Spent Monday having lunch with some of them, then meeting up with more in the gaming room for one final huzzah over CAH. Despite being brainfogged all weekend I still wasn't prepared to leave. Definitely going back next year :-)

More Arisia! )

I do think that I'm a bit past the point of "Are you sure you don't secretly *want* to be sick?" for chronic fatigue, sinus probs, etc. NO. I DO NOT. I'm still looking for that bit of leverage to get out from under the rock, which I think I did find in MES last spring, but then my sinuses rebelled. Will pick up that acupressure book and try a few more new things, some of which got derailed in the past (oh, you wanted to go to the reiki open circle? here's a hurricane instead :-P). Maybe if I can scrounge up the budget I can start doing acupuncture again, maybe just monthly. The BrainSync page sez I need to use their special expensive sleeper headphones, but I can get one of their MP3s on a gift card and try that out via computer speaker, at least for the first time. I have a whole new pinterest board filling up with the newagey side of self-care and coping.


Tho coming back down to earth again, none of this will probly happen this month. Well, maybe some books b/c I have a B&N gift card. Its rather the opposite of what I was planning, but I've screwed up my regular monthly budget enough that I should probably just stay in and sew, and veg out, for the next couple of weekends. Not to mention that I seem to have shrunk so I want to try out some old sewing patterns to see what fits now. Also, stash fabric. And new patches. Sho many. I did laundry the week before con, so I should have the 'livingroom nook' open all weekend for fabric stuff.

There's IRC stuff tomorrow and Thursday, not sure if I'll be up for it. I really am just in the mood for moar sewing this week, maybe some email gaming. And I need to set up some Dunsirn connections now that this new PC is in the MES database.


Doing mostly OK today, except for that whole "Dude, what did I do last weekend?" sense in my brain. Monday night I got home around 8pm, Amtrak was 20 mins early and then every subway train was at the platform when I needed it (thankyee Eshu). Spaced out on the internet for a little while as I tried to figure out if I were hungry or should eat anyway, then eventually realized I could just go to bed. I was already down to cover the 1:30-9:30 shift at work Tuesday, so that left time for lots and lots of sleep. I did try to tarot, but that part of my brain still isn't functional either. Oh well.

And unfortunately I had to choose either baking brownies *or* making this week's lunches last Thursday, so I won't have a chance to cook again until Wednesday nite. Which means two Bareburger lunches are also going on the $$ tracker. My stomach's been ever so slightly upset by BB the last few times, so at least it gives me a chance to see if one item in particular is doing that to me. Yay? Today no lettuce, and still lots of spicy veggies, but I seem a bit better.

<3 Chrysilla
chrysilla: (witch)
Kinda continued with having an off week after last posting. Too tired to go out all last week, but then too spacey to get to bed on time, so I continued being too tired. Ugh. I slept a full 8 hours last night, but then the brainfog rolled back in suddenly, so I don't know what's going on right now. Ugh.


Crafty weekend )

Gamer stuffs )

Tonight I really have to get the laundry done, because yikes. Also, I have guests staying over for the MES weekend, so I'll need the air-dry stuff to be dried and put away before they come in. And Wednesday and Thursday I have doctor stuffs, but Wednesday I also have dinner plans with a friend, so yay. Friday is game, and I'm not sure if I have one houseguest coming in for Friday nite, and another for Saturday, or if they're both staying Friday nite. So could be crowded but I am prepared. And then Saturday is moar game, so w00t. Better not stay up too late on Friday, whatever the situation.

Will do my damndest to get to bed on time all this week. I did it last night, can do it again. I just have to be more strict about no- Facebook or Youtube when I'm home. They just suck me in, I space out, and suddenly I'm going to bed an hour late. And I did mostly manage to keep my sleep schedule this weekend. Well, on Friday, despite late evening chocolate.

There might be a Samhain ritual at an occult shop in Brooklyn next weekend, and its well recommended by an old friend from the Enchantments days, so I might look into that. This weekend is just too cray, and I already consider Samhain more of a season than a specific day. In folklore it was a 9 day festival, but I don't know when that fest started in relation to what is now 10/31. *shrugs*

And crossing my fingers that I'm NOT getting sick again. Oh for F@#$s sake...

<3 Chrysilla
chrysilla: (b5 one of those days)
O wow, two weeks with no proper update. Tho I did use Dreamwidth to take notes on my tummy history, b/c I finally saw the new GI last week, yay! After losing her number and forgetting to call since late January. Dumb brainfog.

Not much happened the week before my friend's wedding (weekend after my last update) b/c I was busy prepping and overall being stressed about travel. But it ended up really nice :-) WeddingCon! )

Last week was ... mixed. Was high on wedding goodwill, but because of the skin irritation the rest of the week put kindof a damper on me. And I had to make a trip to Wallmart for Rich Ppl Whole Foods to get gluten free body lotion and shower stuff. But at least the SoHo location keeps that in its own little area away from most of the annoyingness.

Wednesday I took a half day off so I could finally see my GI, and she is very nice. Didn't dismiss my "oxalates" discovery out of hand, and wants to do the standard list of uncomfortable diagnostic tests. She was actually pleased that I already knew a lot of what she was talking about (other doctors have gotten annoyed with me about that in the past). So the first uncomfortable test is next Monday, before Thanksgiving, b/c I just want to get it over with.

As for oxalates, Adventures in Research )

After the GI I had a therapy session scheduled, but I had a big block of time and there was an urgent-care facility between the offices, so I got my skin problem checked out. Probably TMI ) My one concern now is that if this is/was viral, and I was just at a *wedding*, I REALLY hope it wasn't contagious :-/ But at least it was short lived. And it wasn't bedbugs, phew.


Thursday I still felt skin-yuck, but teh Pooka managed to get me out of the house for the evening with another new friend. Leading to a WTF? moment at Bareburger on Laguardia, where there was a string of mixups about whether or not my *salad* was actually gf. And the confusion started *after* I'd eaten some of if. In the end, they comped my certified GF salad b/c of all of the freaking-me-out that happened. Not as bad as the dead-grasshopper-salad incident, but still, wth Bareburger? And then we went to a nice cafe in the East Village, where the server was very kind about all my food issues. Ironically, feeding me gets *more* complicated in a vegan place b/c of my issues with dates, soy, and gluten. But overall a nice evening out :-)


This weekend started out OK, but kindof sputtered out. Forecast: BRAINFOG )

So today I'm still in zombie mode, but with a shiny new necklace at least. And somehow I made it to therapy on time which is not normal. Does not compute. I think the prednisone I was RX'ed is making me feel weird, but I want to finish out the bottle (Wednesday morning) to make sure the skin problem doesn't come back.

Its weird how I feel like I've come off a really rough week of something, and I really haven't. Its not even been a difficult Monday. Meh.


Realized I should start picking up Xmas gifts for teh fam while I'm having a fiscally responsible month with an extra payday. So that should be fun once I waketheFup. Tho it may be mostly gift certificates, b/c low spoons. If that changes right before Xmas I'ma feel like a jerk tho. Just trying to finish that necklace for *me* was a huge chore, I don't even want to think about making shinies for other ppl these days. Tho maybe that's the Rx talking again?

Also considering a BPAL order, but not a gigantic one. Maybe for Turkey Weekend. At first I thought it was stupidly crazy to type up my full collection into a .doc file, but it's actually been pretty useful for the last week. "That sounds nice, but do I have something similar already? Was that a note I didn't like?" Helped me whittle a list down to two items instead of six. Yaaaaay. I will take any excuse to feel clever these days.



Overall I think I've become steadily less stuff-oriented this year. Hail Discardia! )

I did manage to purge some old but pretty jewelry displays to give away (they just don't fit my style anymore), will photograph them for ppl to look at ... eventually. And I still have boxes of books and equipment to ship to friends who called dibs in *March*, so I really need to haul my butt to the post office. Ugh. My mail-scale still isn't working right, so maybe they'll be OK if I send them an invoice for s/h instead of checking with them first :-P


Last week I had new inklings for a puppet/video/youtube project but ... ugh. I really don't want new projects. I wanna finish the old projects. So am keeping this under my hat for now, tho I'll happily take notes in case I ever have that much energy again.

This week's tarot is very OMG BOOM DRAMA CHANGE OMG!See? )

Despite tarot forecast, I kinda just want to take it easy now. Tho that could still be the short-term Rx talking. I have my GI diagnostic next week, for which I'll have to spend the weekend in preparation (ugh), and then Turkey Day after that, and probably not much happening that weekend either. So there's still a part of my brain that's going 'OMG HAVE ALL THE FUN AND CREATIVE STUFF OR ELSE' but really... I just want to chill. I won't *know* anything new about my tummy until December anyway, so not interested in doing more dietary research.

I was hoping November would be a lot more productive in terms of projects and socializing after WeddingCon, but I couldn't help being sick, and now I want to get this medical stuff over with, so its being productive in its own way. I'm trying a controlled, temporary measure of "F#$% it, I give up" for a couple weeks until then. If I socialize or write stuff, awesome, if not then whatevs.


Unfortunately, I'm also starting to rethink my '2014 MOAR CONS' plan, Con = tired )

Now that I think of it, taking a couple of weeks off from actively trying to restart my life may be the change I actually need. Then I can start fixing things again if I feel better after that. But then if it takes me *this* long to recover from a trip to PA, maybe more cons isn't such a great idea afterall.

<3 Chrysilla
chrysilla: (will thelemic)
Having another very brain-foggy Monday. Not sure if this is due to a post-Halloween sugar crash, a weekend cleaning binge, or the DST time traveling yesterday. Or if its just a normal Monday. *shrugs*

Today I impulse-bought a pendant from a friend's jewelry shop called "Saturn Return". I had not realized that amethyst and fluorite were Saturnine stones. (And luckily, there was room in the budget for it :-P) This helped motivate me to look more into Saturn-focused sorcery, which I've been drifting into b/c of the greatest caveat of magic: If you can't beat 'em, join 'em.

Illness and fatigue are also very Saturnine themes. So I'm looking into the more proactive aspects of that planetary/deity aspect to see if there's something I'm missing. And one of the proactive bits: Following a restrictive diet. The archetype has clearly embraced me, so maybe I should make sure I'm not fighting it and making myself more tired. And obviously it started in the later half of my Saturn Return, although it didn't end when the transit did.

Saturn, rings & things )

Yeah... I think I could get behind a more Saturnine disposition. I'd actually been thinking about it before, but not in terms of this archetype which makes it so much clearer. Even before the gamer-mob, I tended towards the path of least resistance b/c it seemed easier. And continued, b/c it meant spending less energy once I turned spoonie. Now I know the value of planning in advance towards spoon-saving later on. "I don't actually need to readdress this. It was already in the contract. Here it is to read again."

Now, I wonder at how ppl will react to my laying down the law early to avoid drama later on. I'm not really worried about it, b/c the people who know me know what I've been through, and I think the people whom I want to work with in the future would respect me and mah shiny new boundaries. But I'm still curious about what happens next. The world outside is often unkind to lady lawgivers.

Overall, I've seen that socializing does increase my energy (esp now that my makeup isn't secretly poisoning me). Not sure if *responsibility* for projects and other ppl will have the same effect tho. TruGeek was kindof a let down in that department, but then that wasn't a very structured project. Even my co-show-runner almost flaked two out of three events, but our DJ was always reliable, so give it 50/50? And my podcasting project won't require me to lug heavy things and lure an unreliable group of costumed people to a yuppie nightclub once a month. This is much more low-key.


The Saturn studies coincide today with articles about "omg occult is sho popular again!" Um... it never really stops being popular, but OK. Its making me wonder if I should try again to get into professional tarot reading. Tho I'd be a Saturnine fortune teller. Not "Here's what you want to hear in a floofily mysteirous tone" but "Hello I am your pseudo spiritual life coach *SMACK*". Everyone likes edgy now, right? Meh.


In other news, last week was pretty mixed. Samhain and Cleaning Frenzy )

Unfortunately, I did not remember that next weekend I won't *be* home, so I'll have to get ahead of my weekly chores this week after work. Including setting up my food situation for the weekend trip itself. At least the house is clean?

I haven't seen many interesting social offerings on my calendar yet, so I should be fine taking the week to myself, and then socializing like crazy at my friend's wedding this Sunday. I hope. They've been wonderful about having gluten free options, so hopefully that all works out for me. And I finally remembered to cancel the extra hotel reservation tonite, go me.

Also, during the weekend's cleaning/filing frenzy I FINALLY found the GI referral. Will call tomorrow and set up an appointment.

During the weekend I kept eating the chocolates I'd picked up, which were actually not dairy free. And I kept forgetting to take a lactase pill after, but I did eventually. Today I didn't take one at all, and when I remembered I had a bit of a tummy twinge, but otherwise not explosions. So either my lactose intolerance is less intolerant, or there wasn't much dairy in those candies to begin with. Either way, more questions about my insides, I hope this new doc is ready for the onslaught.

<3 Chrysilla
chrysilla: (will thelemic)
Lots of thinks and feels today. So, journal time.

Like I've said before, the fact that I'm sho much extra frustrated about my life right now is hopefully a sign that the brainfog is starting to lift. But ... I'm still frustrated. Life is less than pleasant, and feeling frustrated is unpleasant.

So now I'm trying to figure out if I should just chill out and hope the brainfog is unraveling on its own, assuming this isn't just another outlier, or force my way through it with a jackhammer.

Obvious problem with making a plan of action- if the brainfog comes back, I forget all the plans and end up a zombie again.

Is it the trying/striving that's keeping me fatigued? Or will enough justified anger give me a lift out of this perpetual annoyingness?


Life before *constant* brainfog )

I tried setting up goals & deadlines for jewelry and writing in the last couple of years, every attempt failed miserably. At least, so far. On the other hand, I finished costuming stuff early for DCon. Is this a good sign that I should try that technique again?


Also thinking back to the spring/summer of 2011 when this problem became obvious. And why then?

External and internal system betrayals )

And then there's the idea that I am better physically, but now all that's left is a big mental block that metaphorically resembles a mucus plug in my brain. And the mind makes things real enough.

I have not yet figured out how to hack my brain subconsciously, sadly. And that's assuming that I'm *not* suffering physically. I am not the biggest fan of medical science these days.


Its very difficult for me to not over-think things. Brevity happens when I edit something down.

Possibly the best plan I can think of is that now I can remember that I have a dayplanner (or at least I could this week) maybe I should just stick to very short-term goals and ignore thinking about all of these problems. Or 'letting go' of them, and of the *wanting* to fix them, in the Sedona way. One hour of sewing. One hour of jewelry. Photograph/catalog/upload 5 things for the Etsy shop. One evening out with friend(s) per week. Edit one episode of project. Ten minutes of yoga while watching teh Youtube.

As I learned with saving $$ for DCon, things add up eventually, and then you go o_O I did all that?? And reintroducing myself to what I luv in a low-pressure way may get me back into my old groove. No deadlines. Don't look at the big picture, ONLY look at the thumbnail. And enjoy the thumbnail.


On the other hand... what happens on days when I can't even remember that there is a thumbnail? :-/

<3 Chrysilla


ps, Also still trying not to drive myself crazy before DCon, with mixed results. Which is why the 'just give up' aspects are so appealing.

pps, Oh duh, see also this week's tarot forecast :-P
Tarot on Tumblr
chrysilla: HUGS! (HUGS!)
Better today. A few theories on recent grumpiness:

-I ran out of 5HTP on Saturday nite, and didn't remember to get more until Tuesday evening. It's a chemical that the body turns into serotonin. Durh.

-I've still been a bit extra grumpy before I ran out of supplements and missed other vitamins. Could it be that the brain fog is clearing enough for me to be frustrated about having brainfog? Instead of just staring into space and immediately forgetting what I was thinking about as per usual.

My tummy also isn't helping. Tummy aches, random facial muscle spasms, and dietary implications. )

Thinking about stress )

More good news: my fall scheduling idea is OK with everybody, so next semester I'll still work 1:30-9:30 on Mondays, but every other day will be 9-5 and I'll do the opening shift every morning. So I can keep my sleep schedule more regular, and it helps keep me from staying out late on weeknights (not that its really a problem right now :-P). It also helps those tai chi classes fit my schedule nicely, if I manage to get out there a few times a month. Can get my allergy shots after work from now on, that also fits better this way.


Found this article too, on Scientific American Your thoughts can release abilities beyond normal limits. Includes a study where a fatigue-response was suppressed with a placebo that was supposed to be caffeine. So how do I *consciously* hack my brain into not being all fogged up all the time? I've changed my diet and habits in the hope that they would fix all-the-things, but did I not believe it enough? Are there some disorders even placebos can't solve?


Overall, I've decided *not* to push myself on body hacks or socializing for the next couple of weeks, until after DragonCon. Them maybe I will be rested when I arrive. For once. Assuming there isn't an earthquake and/or hurricane between now and then (2011 was f'ing weird). There will (hopefully) be a meetup of our B5 cosplayers before con, but that's it. Ima enjoy being leisurely and at home this weekend (with optional sewing project :-P), and next weekend there will be lots of laundry and con-prep.

Also... I'm a bit overbudget. More b/c of the electricity bill than anything else. Only a little bit over on groceries (darn fun Indian food section), and I'll still need bananas this week, so *shrugs*. Its still a lot less over than it used to be, yipes. But staying home for inexpensive fun = yay, and con gets its own budget/revenue stream.

Well, OK, I would like to at least try to remember daily light exercise. 10 minutes of yoga per day won't hurt me. Now if only I could *remember* it. Like the tai chi classes, I just forget that they're a thing :-/ I don't really have a goal aside from the exercising itself, weight loss isn't really a thing I care about right now. Its more like I want to prove to myself that I'm capable of remembering it. Is that odd?


Tuesday nite, tho, I completed many tasks written in my dayplanner in a frustrated migraine-infused fatigue-rage, and did not explode or pass out. So that's a good sign:
-I remembered I have a dayplanner! OMG!
-Finished bug-proofing the bathroom.
-Finally fixed my paypal account.
-Got that 5HTP.
-Organized my vitamin case for the rest of the week.
Yay, accomplishments, however modest. That was another nice thing about sewing, completing tasks that *stay*. Unlike cooking.

<3 Chrysilla
chrysilla: (b5 one of those days)
Am not having a good Tuesday the 13th. Nope, nope.

This is the third day I've forgotten my vitamins, and the weather is non-thunder stormy, so I've got a migraine coming in. And I'm the usual sleep-deprived for Tuesday. Its too cold in the office, but now that its sunny now I'm sure it will be too hot and sweaty outside when I leave. My right eye still twitches. Might be suffering from very early pms. I caught my hand in the door of one of t he bathroom stalls this morning. And forgot to do the split-lunch-in-half thing.

Tried to work on some writing stuff, just couldn't focus. CF really is like having a hangover that never ends. Blogger-braggarts today are going on about the ongoing 'hustle' required for a successful goal-getting life, and I would like to smack them all in the head with fatigue, brainfog, and a migraine and see how well they do with *that*.

So u can probably tell that I'm very cranky today. Meh. At least when it's Friday the 13th, its still *Friday* :-P


The weekend was pretty low-key. Very brainless, but less cranky about it. Saturday was vegging and some light craftwork, but mostly it was a fatigue-hangover. So no Browncoats b/c no energy, oh well. Sunday I got to all the regular chores, and more extensive craft stuff. I watched about 2 seasons worth of Burn Notice while doing various things, and treated myself to my favorite lamb shoulder chops b/c they were on sale at the normal grocery store on Friday.

Lost a lot of time on FB and YT, which is starting to worry me. I would have gotten to bed at 11pm as planned hoped, except Youtube. And suddenly I lost 90 mins and still needed a shower. May have to restrict home-internets again, at least from certain social websites. But then what else would I do when I forget what's written in my dayplanner?

Sewing! )

Tummy stuffs )

Looked up that Tai Chi studio I've been trying to get to for *years* at this point. (ugh) If their schedule stays the same, and I get the work schedule I want for the fall, I'll easily be able to take either of the classes I want. Could actually do both time-wise, but not so much $$ wise. If I can just remember its there this year. Would like to at least try exercise again to see if it hurts me.


Sho frustrating. There are things I *want* to do, and I have the time, and they are not at all frightening. I just have no brain-spoons for them. On a bad-to-average day I hardly remember I have any goals or projects, and this month I have no idea why that is. OK, I have a few ideas as stated last week (food, craft binging, sleep dep) but the bad days are that much more frustrating when you haven't had a good day in a while. I have to remind myself that it was the same way back in March (when I already had a crazy diet to follow), but that's only making it more depressing. I've been unable to do much at all this year, and I just can't figure out why.

I have a list of things to do tonite written up in my dayplanner. Fix my Paypal account, finish the current wave of bug-proofing the chantry, and put together my vitamin cases for the week (albeit 2 days late :-P). Btu writing things down only works if you remember to read the things later. And at present, there is a hole in my brain where all the info dribbles out.

I really miss being able to brain. Soon, back to the drawing board, if I can remember where it is.

<3 Chrysilla
chrysilla: I rocked out at Mutant Peep Nite (Hedwig Peep)
Cannot concentrate on cataloging, but I've also finished going thru the 'further search' piles (and managed to catalog about 75% of them, w00t for towers of books *not* falling on me), and TheOldReader is still down, so hello blog.


Realized today how odd it is that I'm looking to work on an audio-drama podcast project, when very few people ever seem to listen to me. But then again, I think I'd be happy enough just completing it for those few people. Yay?


Still fretting and mulling over whether or not I'll be functional when it stops being hot outside. It would be ironic if the warm temps are waking up my system, but also extra-fogging my brain. Or the starch-trick may not work anymore by September. Just don't know what to think. Fretting probably does not help, tho. But like I said, I *do* have more energy, just way less focus, and not enough energy to get over the humidity and go out.


I've been in super obsessive costume/crafting frenzy for days, which now I think is a combo of PMS and a full moon. I've had worse weeks. And at least that brand of brain-weird seems to be subsiding into angsty daydreams. Not sure which I like less. But the getting-crafts-done proves that I do have some energy and focus. Would there be more to work with if it wasn't summer? Or less?


Also thinking through the acupuncture situation. It was really nice having a health-care type person in my life who remembered who I was and what my issues were on sight. Even my nice newish doctor can't do that. But I'm still doing better this month than I expected, physically and emotionally, despite triggers of physical and emo horribleness.


Last night I ordered fabric for the wedding-costume-dress, b/c they were running low on the swatch that I liked best, despite being over budget for the month. It was still only $4 per yard, but I'm deducting that much from next month's 'extras' budget total (tho it counts as spending for this month). And making a list of a few other things I 'need' to pick up in August so I don't overdo it again :-P A couple of lipsticks from the samples I liked (so far, still only 2), B&BW is having a sale so I can pick up my face wash for cheap, I need to get my jackets and coats drycleaned before its cold again, and so far that's it on specifics. Would like to keep it a short, low list in case of emergencies. And b/c DCon will still offset things, even with my savings scheme.

Crafty & sewing stuffs )

And tonight is my allergy shot, so lessee if I esplode. Yaaaay. I remembered to bring an apple to eat at her office, maybe this time I'll remember to take it with me *to* the appointment.


Also had a weird dream last night. I was in a version of my old parents-home bedroom, which was also in my old high school, and I was going through my dresser and other bins of clothing which I hadn't seen in years. New members of my old drama club were poking around with me, and I said I'd happily donate what I didn't want anymore to them for costumes, and that was likely to be a lot of stuff. Odd that my friend Tim R. was also now the 'advisor' in charge of the Masques (he did not go to my h.s.). There was also a lot of wall art that I really liked and wanted to take with me, but there was a LOT of it, and I even wanted to leave some of that behind. And my dresser (which is actually in my chantry now).

So Discardia has now invaded my dreams. OK?

<3 Chrysilla
chrysilla: HUGS! (HUGS!)
So, week and a half or so without posting, whups! On the other hand, the headaches have taken a pretty bad turn this late-June-early-July time of year. So I've also had to bail on socializing plans for the last couple of weeks, contrary to my long-term goals, so kinda sad. On the other hand, I learned the hard way many years ago that going out when you don't feel well can lead to high levels of more ick.

It helps to keep things in perspective. In general, this time last year I was a complete wreck. Severely chronic-fatigued, no real plan of action to deal with it, and no medical support structure to help me. Physically and emotionally depleted, probably the lowest point of the last two years of this body-fail. Specifically, I think it was early July when I had the migraine that was so severe I needed an MRI to make sure I wasn't having a stroke. (It wasn't, and now I have fun free pics of my brain, yay.)

By comparison, things aren't so bad this summer. Even with the headaches (no crazy migraine auras yet), even with having to bail on friends parties and events, even with renewed sleep deprivation & my energy levels plummeting again yesterday and today. My road to less-fail started this time last year, so didn't really become obvious until late August, so I didn't really learn how to deal with the Dog Days of Summer in NYC. Guess I'll learn now, *shrugs*.

This time I have doctors who actually help me, an acupuncturist who is nice and insightful (tho we're taking a break for this month due to financial reasons, and she's even OK with that), and have identified and eliminated dietary and lifestyle habits that were making me worse. Tho the only properly diagnosed problem I have is a barely researched hard-to-treat sleep disorder, it helps to know I have it, and my non-drug guesswork to try fixing it has been helpful.

So I'm hoping this is just a temporary thing, brought on by the heat, and also hoping that I can acclimate to the heat rather than just hide in my home all summer.

I also hope that I'm actually 'leveling' into a more interesting stage of life, b/c the alternative looks very not fun.


As for the last couple weeks of goings on...

Weekend of fabric! )

The 2.5 Day Work Week )

Doctor Visit (no, not that one) )

Patriotically Sick )

Dizzy Cooking for a Four Day Weekend )

Conked out early Sunday nite and got 9 hours of sleep for today. But this morning I had another bout of being a listless lump, almost unable to get my butt out of the house to start the day. That seemed to pass by the time I got to work, but the brain fog is still really bad. Behind the brain fog, my energy levels seem to be fluctuating, but not too low.

I think today's ick is from continued sleep dep, and thus indirectly caused by the heat wave. No matter how many aspects of my life that I hack, or how many precautions I take, you just can't control the weather. Oh well. But up until yesterday and today, my energy levels had been pretty good, so maybe I'll start feeling better now that this week's heat index is around 90F instead of 100F. And I hope I'm acclimated by DCon.

There's a Harry Potter meet up group gathering on Thursday, so I'd like to attend that, but hopefully body fail won't get in the way. I won't force myself to go if it does, tho its nicely close to one of my train lines. Its at a bar with food, but not me-friendly food, so will pack an extra lunch box for that day if I think I'm up for it. Saturday is Browncoats, but I like having my Saturdays free to sleep and/or space out. But its an option.

This morning I remembered to pack one new project into my bead kit and take it to work with me, so that's good. I think with my recent heat issues, and recent weird weather, I'm just going to stay inside on my lunch breaks with craft stuff. I didn't get around to putting some other projects together, but hopefully I can when the brain fog lifts. I haven't had much yen for jewelry work lately, despite the energy increase, but I hope it hits soon. I need shiny things for my DCon & wedding costumes, and my Etsy shop. I think I have enough seed beads & crystals to do more of those types of pieces until August, when I may have to order some more, in that nice specific "I have a list!" way that works quite well for me.

<3 Chrysilla

Today's Health Rating:

1-Horrible
2-Thud
3-Meh
4-OK
5-Yay?
6-Yay!
7-Old normal, YAY!

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