chrysilla: I rocked out at Mutant Peep Nite (Hedwig Peep)
So. I've got some physical/medical issues. (Do they count as medical if nobody knows what's actually going on?)

Will start with the food stuff, b/c that's what people ask about the most. I may add medical stuff later, if people want to see what I've already been tested/diagnosed for before they start giving me more medical advice. (Have you tried... YES.)

And I will continue updating this schpiel as I collect more data (ie, hurt my tummy on more things).

How to feed your Chrysilla )
chrysilla: HUGS! (HUGS!)
My psych apparently didn't get my message asking about LDN two friking weeks ago, so he hadn't done any research or thinking about it, so he said no to letting me try it on his Rx yesterday :(. He only knows it for its original uses and strength. Suxxor. He wanted to put me on more Wellbutrin, I was like nope. On the upside, he confirmed the lysine-effect on this type of virus, so at least an actual doctor weighed in on this part of the plan.

On my way into work I stopped by Lilac's on Bleeker to drown my sorrows in fancy (dairylicious but still gf) chocolate, after spending weeks resisting the cheap Easter candy I <3. Because who gives a f#$% about my inflammation problems anyway :-P

I see the endocrinologist who treats my friend with LDN on 4/3 (earlier than I realized) so hopefully he won't think I'm crazy. Maybe I'll tell him about the 'knitting endo' to garner sympathy, tho that didn't work on my psych.

But overall very mopey and defeated right now. Just ... F#$% you doctors :-/


Warning: fabric binge )


Then there's the question of *if* I got to try LDN, would it bring my size/weight down? Would I then have to take in everything I've sewn in the last few months? Another good reason to put it off a couple months. On the outside chance I get to try experimental medicine drug.

<3 Chrysilla
chrysilla: (b5 one of those days)
So I've lost about 8ish lbs off my average weight since early February, which *might* indicate that the no-dairy rule on my current diet plan is helping deflate some inflammation.

From now on, I'd rather not use the term Paleo b/c it annoys me. It is now the Inflammation Diet. The "My Insides Are On Fire Diet" was too long and the initialism was clunky. MIAOFD? Meh.

Viruses get die-offs too? )

Sleep is still f'ed, but not sure if that's due to bodily weird or Impending Spring Syndrome. Very annoying tho. Impending Spring Syndrome has also encouraged me to buy new makeup, and make new clothes, but then the latter actions are stymied by Chronic Fatigue Syndrome, which claims it was here first. *sigh*

Current plans, try to settle down my accursed FOMO, get more sleep, take more epsom salt baths for skin weirdness (you finally cleaned the darn tub, now f'ing use it pls). The whole city + dayjob will be shut down on Tuesday b/c snow (french toast alert level at 4), and would like to do some sewing for a project, but will settle for more coma-time.

Not sure if I'll be running my tabletop game this month, or going to the MES NYC Feature Game this weekend, b/c apparently I need my weekends for coma time this month :-P Not sure if I should call it now, or wait until the last minute.

<3 Chrysilla
chrysilla: HUGS! (HUGS!)
Haven't been bloggin much, but at least that means March has been better than February?

Health Stuff )

As for general fatigue... its a bit on and off. On one hand, the sleeps are weird, so when I go home I'm not really awake enough to do functional stuff.

But I've been experimenting with *making* myself go out to do more things after work and on weekends, and every time so far I've felt better. Even when I was feeling stomach-ick or moody at work, or too queasy to finish the dinner I brought with me. So while I do believe all the CF was kicked off by physical/medical problems, now it's mostly a 'set point' problem that I have to psych myself out of. It hasn't been a perfect experiment (ugh, winter) but as it warms up it should get easier.


Unfortunately, the coming spring is also stirring up ... feels. And that has not been pleasant. Its much easier to be a happy spinster when its not springtime. Pheromones and hormones seem to shoot off at odd times (and at really inappropriate people :-P) but I don't have any reliable or realistic targets. And to be honest, I've been brainfogged for so long, and screwed over by so many jerks in the years before CF, I don't even know what I want or am looking out for anymore. And obviously I can't afford to waste my time/energy on someone who can't take care of me when I'm having a flare up, or respect my weird health-needs in general. So I guess I'm high maintenance now. Wth.

Now that I think of it, I didn't have the energy to feel this way last spring, so maybe its another good/aggravating sign of better things to come? Not with romantic b.s., but that soon I'll be able to get my creative projects up and running again with these wandering but pointless passions.


An excellent distraction from health and guy problems is RPGs, so its a good thing I've rejoined Cam Club. Read more... )

Another friend has resolved to go to a (free) museum every week, so that's been another good way to get me out of the house and out of my head. Tho I've only made it to one so far, b/c tummy and sleep probs. Hopefully more this spring :-)

On Saturday I saw The Jedi Macbeth, and some of my lightsaber friends are also trying to lure me back in. "Empire" only has classes once a week so that may work. And they seem very understanding of my hesitance b/c CF. Maybe I'll just go for the lightsabering exercise and not do all the con stuff to start. They're part of Rebel Legion, so I'd need to make a screen accurate costume, ugh.


I think my tarot skillz are also starting to wake up as of last week, yaaay. So this week I'll try to remember to tarot at IAF and a friend's going away party. Thursday will either be gallery hopping or Sci Fi club.

Not sure if anything is going on Friday, but the party is on Saturday night, so may just stay in. I'm still kinda health/germ phobic b/c all the jerks came back from Spring Break with extra coughing and sneezing. Grr.

But things are starting to work out. Hopefully they continue on that way. I'm slowly coming out of my isolation and it looks like a good thing :-)

<3 Chrysilla
chrysilla: (b5 one of those days)
So that's another very mixed two weeks. Arisia was great, and then the endoscopy was fine, and then I had a sinus infection that still hasn't let go of me. But I had to go back to work last Wednesday anyway.

First, Arisia! Read more... )

And then, an endoscopy. Read more... )

And then, a headcold/sinus infection thingie. Read more... )

Now things are sortof back to normal, except my supervisor transferred out of our department last week on Friday, so I have some new duties to attend to around the office. Which I made sure to write down b/c of medicine fog :-P. Sad to see him go, but he's going to a more tech-programming focused department.

Hopefully the boss will get on with filling the position soon, b/c I'm already feeling the lack. Without a manager to back us up, I still have to come in for opening shift if I get sick again :-/ Over the last couple of years it seems like I only get one terrible cold-out per semester, but I didn't get to recover fully before going back to work this time, so eep. Also, hopefully they get a move on with that, b/c apparently the position doesn't require an MLS. Which means more of my IT-centric friends may be able to apply. Hooray!


While I was sick, BPAL put out their Lupercalia limited's, but obv with a sinus infection I haven't done all the figuring out for that :-P But they'll be up until March 18th, and I'd like to read some reviews before I buy (if possible), and I'll be splitting my order between two months to save teh budgets. They're also discontinuing a bunch of scents on 3/18, including a couple of imps I recently aquired and enjoyed, but not sure if I want bottles. Plenty of time to figure it out, hopefully, after the sinuses subside :-P At least spending $$ on perfume means I can't spend it on fancy chocolates this month.


While sick, apparently in the last throes of Venus in retrograde, I started missing having things to work on that my brain could actually keep up with. Crafty Stuffs )

On a whim of some kind (it was hazy, I don't remember clearly), I decreased last week's lunch boxes to see what happened. And my digestive system was a bit less cranky, and I wasn't extra hungry after work. Tho granted, I may be too spaced out on cold meds to notice. So Ima keep doing that, which means less grocery bills.

There's a shortage of a few things at home, b/c I'm starting to space out my monthly CC trips differently. Now instead of going the first Saturday of the month, Ima go after the first payday of the month. B/c I'm tired of having to shuffle $$ around accounts to get groceries after paying all my bills. Darn monies.

Last week I also noticed that if I put all of my savings into my Roth IRA each month, instead of splitting it between IRA and emergency savings, I could max out my Roth IRA this year. Did a bit more research, and in a job-loss sort of emergency I apparently can take $$ out of my Roth without a penalty. Or at least without the same penalties. I have about 2-3 months expenses saved in the regular savings account, and "experts" say to have 6+ months saved, but Future Retired Chrysilla won't be able to eat ramen, so I'd like to start maxing out the IRA pls. If I have to drain emergency savings for some reason, I can go back to splitting paymetns until its refilled.


And there was tarot, but a big reading for Imbolc. I was a bit... fuzzy, but I got there eventually. Tarot photo! )


Overall... I want to go out and see my friends, and do fun stuff. But I'm still actively sick, as compared to the passive sick I sortof always am. And I'm still waiting for more medical data. I don't feel patient so much as "I f'ing give up already". Will see how it goes. Felt better this weekend, but if today's cranky-making blizzard puts me in a sinus relapse, I will be even more cranky. And I just plumb forgot my last allergy shot appointment (before Arisia), so I have to get that together as well. Will call that doc tomorrow.

This week I'm going to see Coriolanus at the NYU place, so hopefully that will be fun. Would like to stay out after with friends, but I'm not sure what my body will be up for. :-/

<3 Chrysilla

Today's Health Rating:

1-Horrible
2-Thud
3-Meh
4-OK
5-Yay?
6-Yay!
7-Old normal, YAY!

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