chrysilla: I rocked out at Mutant Peep Nite (Hedwig Peep)
So. I've got some physical/medical issues. (Do they count as medical if nobody knows what's actually going on?)

Will start with the food stuff, b/c that's what people ask about the most. I may add medical stuff later, if people want to see what I've already been tested/diagnosed for before they start giving me more medical advice. (Have you tried... YES.)

And I will continue updating this schpiel as I collect more data (ie, hurt my tummy on more things).

How to feed your Chrysilla )
chrysilla: (b5 one of those days)
So that's another very mixed two weeks. Arisia was great, and then the endoscopy was fine, and then I had a sinus infection that still hasn't let go of me. But I had to go back to work last Wednesday anyway.

First, Arisia! Read more... )

And then, an endoscopy. Read more... )

And then, a headcold/sinus infection thingie. Read more... )

Now things are sortof back to normal, except my supervisor transferred out of our department last week on Friday, so I have some new duties to attend to around the office. Which I made sure to write down b/c of medicine fog :-P. Sad to see him go, but he's going to a more tech-programming focused department.

Hopefully the boss will get on with filling the position soon, b/c I'm already feeling the lack. Without a manager to back us up, I still have to come in for opening shift if I get sick again :-/ Over the last couple of years it seems like I only get one terrible cold-out per semester, but I didn't get to recover fully before going back to work this time, so eep. Also, hopefully they get a move on with that, b/c apparently the position doesn't require an MLS. Which means more of my IT-centric friends may be able to apply. Hooray!


While I was sick, BPAL put out their Lupercalia limited's, but obv with a sinus infection I haven't done all the figuring out for that :-P But they'll be up until March 18th, and I'd like to read some reviews before I buy (if possible), and I'll be splitting my order between two months to save teh budgets. They're also discontinuing a bunch of scents on 3/18, including a couple of imps I recently aquired and enjoyed, but not sure if I want bottles. Plenty of time to figure it out, hopefully, after the sinuses subside :-P At least spending $$ on perfume means I can't spend it on fancy chocolates this month.


While sick, apparently in the last throes of Venus in retrograde, I started missing having things to work on that my brain could actually keep up with. Crafty Stuffs )

On a whim of some kind (it was hazy, I don't remember clearly), I decreased last week's lunch boxes to see what happened. And my digestive system was a bit less cranky, and I wasn't extra hungry after work. Tho granted, I may be too spaced out on cold meds to notice. So Ima keep doing that, which means less grocery bills.

There's a shortage of a few things at home, b/c I'm starting to space out my monthly CC trips differently. Now instead of going the first Saturday of the month, Ima go after the first payday of the month. B/c I'm tired of having to shuffle $$ around accounts to get groceries after paying all my bills. Darn monies.

Last week I also noticed that if I put all of my savings into my Roth IRA each month, instead of splitting it between IRA and emergency savings, I could max out my Roth IRA this year. Did a bit more research, and in a job-loss sort of emergency I apparently can take $$ out of my Roth without a penalty. Or at least without the same penalties. I have about 2-3 months expenses saved in the regular savings account, and "experts" say to have 6+ months saved, but Future Retired Chrysilla won't be able to eat ramen, so I'd like to start maxing out the IRA pls. If I have to drain emergency savings for some reason, I can go back to splitting paymetns until its refilled.


And there was tarot, but a big reading for Imbolc. I was a bit... fuzzy, but I got there eventually. Tarot photo! )


Overall... I want to go out and see my friends, and do fun stuff. But I'm still actively sick, as compared to the passive sick I sortof always am. And I'm still waiting for more medical data. I don't feel patient so much as "I f'ing give up already". Will see how it goes. Felt better this weekend, but if today's cranky-making blizzard puts me in a sinus relapse, I will be even more cranky. And I just plumb forgot my last allergy shot appointment (before Arisia), so I have to get that together as well. Will call that doc tomorrow.

This week I'm going to see Coriolanus at the NYU place, so hopefully that will be fun. Would like to stay out after with friends, but I'm not sure what my body will be up for. :-/

<3 Chrysilla
chrysilla: (galadriel lembas mix)
So... been a while. Oops. Moving on...

Winter break turned out to be very low key and sleepy for me. Hibernation )

Adventures in Noms )


And then I came back to work, and tried to give up chocolate. More mixed results... )

For all the food-work, I really don't seem any better in the tummy region. Doctor Stuff )

Far more exciting than medical procedures, Arisia is this weekend! And my friend and I are taking the train to Boston, so I don't have to starve myself or deal with travel sickness. From researching and asking questions on the forum, I've found that most of the hotels restaurants have gf options, so if I can just fit some brownies in my suitcase and find a CVS in town to pick up chips and tuna, I should be fine for noms all weekend.

Ima do my best to treat it as a vacation, and just relax, and do the things I wanna do. And wear pretty things and geek out. Or monopolize the bathtub b/c tired if I have to. But its a new con, so I'm trying not to get to invested in a certain sort of con experience, b/c ultimately I don't know what it is yet. But I'm not vending either, so already score one for me.


Not much else going on. Between germ fear and pre-con preparation (extra rest so far), I haven't gone out much since getting back to work last week. But I did set a Geekolution- Ima watch as much Classic Doctor Who as I can this year. Tho having added 100 DVDs to my Netflix queue, I realized that doing one a week won't finish the series. But if I *only* watch 50 I'm OK with that. And I'm going to try watching them in order, or as much in order as the supply will allow.

Not really setting any actual/normal NY resolutions. B/c anything I want to do is contingent on my health improving, which I've been working on all along anyway. Sitting on my comfy couch and watching DVDs every Saturday nite? That I can probably do, as long as I don't space out and forget to send my discs back.


I think I've decided to get back into sewing, but no more deadlines (except DCon, but that'll get done early). Tho I set out some projects to finish/fix this weekend, and ended up watching DVDs and vegging out instead. I don't consider that a fail. I just miss having some kind of project to work on, and quitting sewing didn't improve the volume of my writing at all. So I'll work on these crafty projects until (hopefully) my brains come back to me. Am also fine not pushing myself on projects right before a con vacation. Fabric can wait.


Also got some Twilight Alchemy Labs oils for ritual work last week. Sadly, it looks like STFU isn't actually helpful in quieting loud neighbors, but White Light is pretty and relaxing, and Radiance of Ra is pretty and energizing. In fact, they all smell really nice (even STFU), so it'll be hard reserving them for ritual use only. Cuz I've totally forgotten the giant box of BPAL (TAL is actually a sub-company of theirs) I already have. I'm silly. And now I need to reorganize my ritual oils box :-P May bring Ra with me for Arisia, in case I need a boost, along with my perfumes.


Less fun, last week served to remind me about how many of my friends are moving forwards with their lives, in a variety of ways and directions, and I'm still just ... stuck. Like I have been for 2.5 years, and 1.5 years of actively trying to dig my way out of zombie-mode. All the weird diets and lifestyle changes may look crazy and time consuming, but they're really all I have to feel like I haven't completely failed yet. So Ima keep on with those :-P

<3 Chrysilla
chrysilla: (galadriel lembas mix)
Well, not entirely. I did spend most of last week going straight home after work and resting some more. Got a few extra-long nights of sleep, too. Tho on Thursday I was home sick b/c of a ridiculously painful stomach upset + sleep dep late Wednesday nite.

And Friday night I actually managed to go out with an old friend for dinner and then Nerd NYC's boardgame night, which I'd forgotten about until he started steering me towards the cafe. Late in the work day, my brain basically sat up and said "If we don't go out tonight in some fashion, I will make you MISERABLE to be home alone." So... went out. I have really forgotten how to socialite, but my friend saw my whiny tweet and was available for noms.Was very fun! Got to catch up with my buddy, have good noms including a milkshake b/c I was tired of not having milkshakes (had pills, so no negative consequences, yay), and then I learned to play three new card based games with a brain that is usually made up of gf mush. Yay!

The weekend was fail again, b/c of me being stupid about what I ate (considering new stomach problems), and over-working myself on chores, so I didn't have the spoons to go to my friend's holiday party on Sunday nite. So the weekend started really good, and then ended with me feeling like a jerk and a dummy. Oh well.


There was a recurring theme of dietary and stomach stuff all week. Cut for boring continued whining about tummy issues. )

My GI didn't call back about the celiac test, so I don't know if that means it was negative, or the results haven't come back yet, or if her office is just super disorganized. I really hope I don't have to go thru the testing process again, b/c NO never again. Ima write up a list of questions for my appointment Tuesday afternoon so I don't forget or get lost in a brain fog. Tho I guess the new (?) symptoms might require a new (different) procedure, hopefully not as hardcore as the other one. Eeek.

I also really need to see a dentist soon. Will try to remember to look it up while on break, but probably won't be able to line up an appointment that quickly. Will see.


Tomorrow's appointment is in Union Square at 3:30, so Ima do the last of my holiday shopping around there, too. And maybe, finally, pick me up some snow boots. With luck I won't need them tomorrow :-P Then Ima meet up with a friend after she gets off work, for Burgers & BPAL (well, technically BPTP, but close enough).

And my giant BPAL order finally shipped today, So Bpal stuff )

Was going to work a grocery shopping list out with the 'rents, so they could pick stuff up and I could cook Cris-friendly noms in their kitchen while I'm there for the holiday, but ... most of my fun baking recipes are almond based. So I need to email them saying that won't work out. They're pretty good at getting me shelf-ready noms tho, and I can still has chocolate (and fruits, & veggies), I certainly won't starve. Now I'm working on a list of LOD recipes I want to try out over winter break, but I hope I don't spend my whole vacation cooking. Or sick, for that matter. Sleeping all vacation would be acceptable, if not preferable.

Ugh, everyone in the library is coughing and its getting on my nerves. And I don't want to get sick right before my vacation. Ugh I hates it. Haaaaate it. And everybody is crazy studying for finals tonight, so I don't see how they're allowing the coughers to live.


Otherwise, no plans for the week. I supposed if I have another sudden ARGHNEED to go out I can actually call on ppl directly to see what's going on, and there's always improv theaters in a pinch. But my energy levels have been really random for the last few weeks, and my tummy is always unpredictable. So Ima just chill out, and hope these spoiled students don't all get me sick before I leave on Friday. I'm also out of stick days, so hopefully my tummy doesn't make me sick either. Only respiratory stuff is covered by my overly complicated FMLA claim.

I'm a bit sniffly today, but furiously fighting the could-be illness. Grrr. And its not like I haven't already been sniffly for weeks. Aside from that the outside-weathery-cold doesn't seem to be messing me up so far. Its still in refreshing-mode for me.

<3 Chrysilla
chrysilla: (b5 one of those days)
Last week's plans kinda backfired. My body, especially the digestive system, is still pretty upset about the medical procedure I have a couple weeks ago. On top of that, extra lethargy and brainfog, which I can't tell is part of the digestive protest or the changing weather. *Or* b'c I tried ginko supplements again last week. The last time I tried them, I was also very extra groggy, but there were other medical things going on too (part of No-vember :-P). Maybe I'll just leave that bottle on the shelf for a few *months* this time and try again later. Its not like it was helping.

And that pretty much sums up last week. Wednesday I forced myself to go see the first two shows at Magnet Megawatt, and the shows were good, and a few ppl remembered who I was which was nice. But while going out with friends for a night of gossip and brain-ing can sometimes wake me from the brain/body fogs, sitting in a dark theater watching a show isn't really as stimulating. Tho they were still very good shows, so I look forward to seeing more improv when I stop having all the brain worms.

Thursday night, b/c it was kinda warm that day, I decided to have a frozen fruit smoothie to help get thru all the stuff in my freezer. The next day my stomach was extra extra cranky. Either the bananas were not-good before I froze them, or blue and blackberries have more oxalates in them than I realized. They're *kinda* high on the scale, but the scale itself is kinda wobbly, and concentrations of a fruit's makeup can change a bit after freezing. I have a friend who may be willing to take the blueberries off my hands, there's a f'ing ton of them b/c I splurged at CC in the early autumn. I'd rather give them to someone who can eat them than toss them out.


The rest of the week I kinda gave up on socializing b/c I just felt so blegh. Didn't manage any writing either. Spent the whole weekend inside, with possible going-out plans in case I suddenly felt better, but nope. I did manage to do the big CC grocery trip, including a frozen duck Ima play with over winter break. And stayed on budget, yay for me.

All teh fooding )

Back on the downside tho, the mouse-problem has returned to the library. Tho it always looks like the same mouse. After the first sighting on ... Thursday (? Ugh, so brain fogged)... some ITS guys showed up to fix the holes they'd made in one of the electrical closets the week before. And those closets are supposed to be totally sealed of holes for firecode reasons, so that seemed a likely reason for the sudden mouse. If its not the same one, there's more holes (but we don't have the keys to those closets, one of the maintenance departments has reign over that), if it is the same one then it must not have gotten back home before they sealed everything up. Either way, I called a second time for moar traps, so hopefully they'll come over soon. Ugh. Do not like, not at work pls :-(

Last week I also picked the Sedona book back up, b/c I've slacked off on that emotional mindfullness stuff. So will see if that helps, with phobias and in general.


This week is pretty clear except for a friend's holiday Yule party next Sunday, and then next week I have my GI follow up and my allergy shot. So this week I may just leave my schedule open for more resting and relaxing until Sunday. And I've already decided not to feel guilty for doing that.

Might as well just accept that my body is still made of fail (and according to a friend who has the same procedure, this can last for weeks afterward :-P) and cross my fingers that I'll feel better for winter break in two weeks (instead of getting my bi-annual sinus infection :-P). And then its two weeks of not having to deal with the world if I don't want to, yay.

Today I came into work to find the package from my friend's shop had come in, yay! Ritual/perfume oils, including a very generous freebie. Already wearing the Lavender healing oil, because. So may get to some pagan-ing while home recuperating. Also realized today that I've been using 'honey jars' like mojo hands. Whups. Not really sure whether or not its working anyway, tho. Tho following that logic, I could try using my spiffy new ritual oils to *feed* them like mojo hands. *ponders*

<3 Chrysilla

NO-vember.

Dec. 2nd, 2013 08:25 pm
chrysilla: (b5 one of those days)
November was pretty much a wash. Just ... ugh. One random illness after another, and 2 of 3 were medically induced.

Sick After Sick )

So yah, that wasn't fun. Wednesday I was able to go back to work and eat normally, but from there I went straight to NJ for Turkey Day. My immediate family picked up some nice gf options for me, and at the extended-family party on Turkey Day proper my aunt who has Celiac came out so there were more gf options. Another relative mentioned that Askhenazi Jewish ppl and Irish ppl both have high rates of Celiac, and since that's all of my genetic heritage on Dad's side things make a bit of sense. And then came all the family gossip on old age, estates, etc, and now I freaked out enough to want to start investing my extra $$ more aggressively in 2014. Yay?

And then Black Friday happened, and I participated, but I don't thing going to a NJ craft store on Friday afternoon was so heinous. We drove past the malls, very glad we weren't involved in that craziness. And I picked up materials for *making* presents, so my conscience is clear.

And the BPAL binge happened. In which I can't tell if I have a problem... )

On the other hand, comparing hoarding BPAL to hoarding fabric has made me reframe my costuming plans a bit. In that I'm not sure I want to buy fabric and sew it anymore. Or tackle the giant costume plan I had for DCon. But I've also been sick for all of November, after a crazy sewing binge, so Ima give it a few more months. At least I'm sticking to my plan to not buy new fabric until after January. May take out a jacket pattern during Winter Break, or not, will see. I think sewing is something I should only do in the summer, when its too hot outside to think straight anyway.

A couple weeks ago I had the sudden, serious notion to sell all of my jewelry supplies on Etsy and cash-out of the business. Of course, that would be as much energy as making and selling my own jewerly, so probably won't happen any time soon. But the thought popped up. If someday I have the energy for jewelry again, but I still don't actually want to make any, then I may start working on that. Again, I've been sick for weeks, and I tend to make life-cuts when I feel stuck and frustrated like this. Usually its low key, like throwing out clothes that don't fit me, or empty bottles of hair products under the sink. I hesitate before shutting down a business that took years of my life (and a TON of credit card debt :-P) tho.


That reminds me, I finally cleaned up the bathroom this weekend. Tossed a ton of recyclables and took out a shelving thing that wasn't working in the space. It will live on the balcony until I figure out what to do with it. So that's good. Unfortunately, after the normal weekend chores were done that took up the last of my energy. So I had just enough spoons to overspend my spoons. Thus, I don't feel that much better today than I did for most of November. But I do feel a little better. And November is over, lets see if December is healthier.

And my Dad was nice enough to take the rest of my Discardia bin back to NJ with him, where charity groups will pick stuff up from their house when called. So I've got that little 1.5 x 2.5 bit of floor space back again, which is bigger than you'd think in such a tiny apartment. So the Chantry feels a bit neater overall this week. And I smudged with a nice incense blend I made up, cleansing and protecting. Never used sage before and I have definitely been missing out :-)


While I accomplished many home-things over the weekend (I don't think I've ever crossed out all but one thing on my wknd to-do list, OMG, no wonder I'm tired now) I was very frustrated that I didn't *go out* to do anything. But again, sick for weeks. And Saturday my tummy started trying to reestablish its boundaries and... urgh. So it was probably for the best that I stayed in.

This week, assuming I start getting some spoons back, I'd like to do some of that going-out other ppl talk about. I'm bad at organizing things, so I may default to an improv night. I'd really like to finally see Thor 2, so I might do that right after work on Thursday and then go to SFC after. Or maybe something else will come up. Its weird tho, the events page on my FB account is pretty thin for December, which everyone always says is overbooked.

Sadly this month's Browncoats is a holiday party on LI, so between the tired and the gluten I'm not going to make it. But an old pagan buddy is having her Yule party in the West Village, so that will be nice. There will probably be more holiday parties eventually, but sadly I can't do one of my own anymore. Its just too much work and not enough space. But I do get a solid two weeks off for Winter Break, so I hope I'm healthy enough to go to other ppl's parties this year.


Was looking over con plans for 2014, and after the PA trip earlier this month I'm not sure of ALL THE CONS is such a great idea now. On the other hand, I was already a bit sick when I went to PA. I'm already booked and paid for Arisia, so that's a go. And I'm still leaning towards Dexcon in July, even tho I tend to be sick on 7/4 (then again, I'm *home* on 7/4). So if I just add those to the year, that's three times more cons than usual. Otherwise, I think it might be more worth it to just make an effort to be more social and geeky in NYC, where I know all of my gluten-challanged food options, and I already have a train ticket and a place to sleep.

Maybe that would be a good re-framing exercise. "Am I too tired to go to this thing that's out of the house tonite/this weekend? Well, would it be more or less taxing than going to a new convention in another state?"

<3 Chrysilla
chrysilla: (b5 one of those days)
O wow, two weeks with no proper update. Tho I did use Dreamwidth to take notes on my tummy history, b/c I finally saw the new GI last week, yay! After losing her number and forgetting to call since late January. Dumb brainfog.

Not much happened the week before my friend's wedding (weekend after my last update) b/c I was busy prepping and overall being stressed about travel. But it ended up really nice :-) WeddingCon! )

Last week was ... mixed. Was high on wedding goodwill, but because of the skin irritation the rest of the week put kindof a damper on me. And I had to make a trip to Wallmart for Rich Ppl Whole Foods to get gluten free body lotion and shower stuff. But at least the SoHo location keeps that in its own little area away from most of the annoyingness.

Wednesday I took a half day off so I could finally see my GI, and she is very nice. Didn't dismiss my "oxalates" discovery out of hand, and wants to do the standard list of uncomfortable diagnostic tests. She was actually pleased that I already knew a lot of what she was talking about (other doctors have gotten annoyed with me about that in the past). So the first uncomfortable test is next Monday, before Thanksgiving, b/c I just want to get it over with.

As for oxalates, Adventures in Research )

After the GI I had a therapy session scheduled, but I had a big block of time and there was an urgent-care facility between the offices, so I got my skin problem checked out. Probably TMI ) My one concern now is that if this is/was viral, and I was just at a *wedding*, I REALLY hope it wasn't contagious :-/ But at least it was short lived. And it wasn't bedbugs, phew.


Thursday I still felt skin-yuck, but teh Pooka managed to get me out of the house for the evening with another new friend. Leading to a WTF? moment at Bareburger on Laguardia, where there was a string of mixups about whether or not my *salad* was actually gf. And the confusion started *after* I'd eaten some of if. In the end, they comped my certified GF salad b/c of all of the freaking-me-out that happened. Not as bad as the dead-grasshopper-salad incident, but still, wth Bareburger? And then we went to a nice cafe in the East Village, where the server was very kind about all my food issues. Ironically, feeding me gets *more* complicated in a vegan place b/c of my issues with dates, soy, and gluten. But overall a nice evening out :-)


This weekend started out OK, but kindof sputtered out. Forecast: BRAINFOG )

So today I'm still in zombie mode, but with a shiny new necklace at least. And somehow I made it to therapy on time which is not normal. Does not compute. I think the prednisone I was RX'ed is making me feel weird, but I want to finish out the bottle (Wednesday morning) to make sure the skin problem doesn't come back.

Its weird how I feel like I've come off a really rough week of something, and I really haven't. Its not even been a difficult Monday. Meh.


Realized I should start picking up Xmas gifts for teh fam while I'm having a fiscally responsible month with an extra payday. So that should be fun once I waketheFup. Tho it may be mostly gift certificates, b/c low spoons. If that changes right before Xmas I'ma feel like a jerk tho. Just trying to finish that necklace for *me* was a huge chore, I don't even want to think about making shinies for other ppl these days. Tho maybe that's the Rx talking again?

Also considering a BPAL order, but not a gigantic one. Maybe for Turkey Weekend. At first I thought it was stupidly crazy to type up my full collection into a .doc file, but it's actually been pretty useful for the last week. "That sounds nice, but do I have something similar already? Was that a note I didn't like?" Helped me whittle a list down to two items instead of six. Yaaaaay. I will take any excuse to feel clever these days.



Overall I think I've become steadily less stuff-oriented this year. Hail Discardia! )

I did manage to purge some old but pretty jewelry displays to give away (they just don't fit my style anymore), will photograph them for ppl to look at ... eventually. And I still have boxes of books and equipment to ship to friends who called dibs in *March*, so I really need to haul my butt to the post office. Ugh. My mail-scale still isn't working right, so maybe they'll be OK if I send them an invoice for s/h instead of checking with them first :-P


Last week I had new inklings for a puppet/video/youtube project but ... ugh. I really don't want new projects. I wanna finish the old projects. So am keeping this under my hat for now, tho I'll happily take notes in case I ever have that much energy again.

This week's tarot is very OMG BOOM DRAMA CHANGE OMG!See? )

Despite tarot forecast, I kinda just want to take it easy now. Tho that could still be the short-term Rx talking. I have my GI diagnostic next week, for which I'll have to spend the weekend in preparation (ugh), and then Turkey Day after that, and probably not much happening that weekend either. So there's still a part of my brain that's going 'OMG HAVE ALL THE FUN AND CREATIVE STUFF OR ELSE' but really... I just want to chill. I won't *know* anything new about my tummy until December anyway, so not interested in doing more dietary research.

I was hoping November would be a lot more productive in terms of projects and socializing after WeddingCon, but I couldn't help being sick, and now I want to get this medical stuff over with, so its being productive in its own way. I'm trying a controlled, temporary measure of "F#$% it, I give up" for a couple weeks until then. If I socialize or write stuff, awesome, if not then whatevs.


Unfortunately, I'm also starting to rethink my '2014 MOAR CONS' plan, Con = tired )

Now that I think of it, taking a couple of weeks off from actively trying to restart my life may be the change I actually need. Then I can start fixing things again if I feel better after that. But then if it takes me *this* long to recover from a trip to PA, maybe more cons isn't such a great idea afterall.

<3 Chrysilla

Today's Health Rating:

1-Horrible
2-Thud
3-Meh
4-OK
5-Yay?
6-Yay!
7-Old normal, YAY!

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